As her incurable condition progresses, so do Billie's treatments.

Billie's mother, Peta Ingles, became involved with the Cystic Fibrosis Goulburn and District charity when her daughter was diagnosed. She is now the treasurer.

"I didn't know anything about CF until Billie was born and diagnosed," Ms Ingles said.

Cystic Fibrosis Goulburn and District was established 50 years ago.

CF is the most common, life-shortening, genetic condition in Australia.

Every four days, a child is born with the condition. There is currently no cure and CF patients are not expected to live past the age of 30. People diagnosed with CF are advised not to be within six feet of each other. They have be careful which schools, play dates, events and appointments they attend.

Cystic Fibrosis Goulburn and District committee member Sylvana Aliffi joined when her grandson was diagnosed with CF.

She is passionate about helping the community and the Ingles family. "I met Peta when I was selling raffle tickets a couple of years ago," Ms Aliffi said. "She burst into tears when she bought them and realised she wasn't alone."

The pair were keen to emphasise they wanted to make people aware of the support group. They say they have been inspired by the fund- and awareness-raising of past and present fellow committee members.

CF Goulburn and District can assist with medical equipment expenses and offer emotional support.

The group meets on the first Thursday of the month and anyone is welcome to join.

The charity will soon host a dinner to raise money for cystic fibrosis research and support in the Goulburn community.

The second annual 65 Roses Charity Dinner will be held at Goulburn Workers Club (enter via McKell Place) on Saturday May 25.